Check out our fabulous fundraisers and events happening in 2013!
Fundraising for 2013
Good luck to Sue Mawson who will be running the Tewkesbury 1/2 Marathon on 19 May for IIH UK!
Michelle Johnson has organised a non school uniform day at her son's school on 22 May!
The NEW IIH UK Weight Loss Challenge! Open to registration throughout the year. For more information and to register, please use the website: www.iihukwlchallenge.moonfruit.com
Events Coming Soon!
- Laura Costello is cycling with 3 friends from Manchester to London to raise funds for IIH UK on the 3 June.
- Good luck the Business Class at Langside College in Glasgow on 3 June with your IIH UK Fundraiser!
- Nikki Dodds is running The Great North 10K again this year for IIH UK on the 23 June!
- Brave Katie Parratt (who is scared of heights) will be sky diving for IIH UK on 3 July.
- Charlene Neviani has organised a fabulous event in The Star pub in East Hill, Ashford on 29 June. It promises to be a great day, with lots to do, so make sure you save the date!
Jess Gawn is organising a BIG EVENT in aid of IIH UK at the Colonial Bar in Horndean in Portsmouth on 25 August. With lots to do for all the family, it promises to be a great day out!
Josh Thomas will be competing in the Norwich Triathlon and raising money for IIH UK on 7 July with a 1.5K swim, 40K bike ride followed by a 10K run!
Chris Randall a fabulous fundraiser ran the Brighton Marathon recently for IIH UK. Chris looks like he was enjoying the run in this photo!!
A non school uniform day is being organised by Kayleigh Danks and Katie McCloud is organising a sponsored walk more details soon...
Eileen Dodds organised a cake sale at her work and raised £530!
Great North Run 15 September 2013 Jill Anderson will be running to raise money for IIH UK - can you join her?
Great South Run 27 October 2013 Alan Doughty will be running for IIH UK - can you join him?
Melissa Phillipson's Yummy IIH UK Challenge!
Young IIH sufferer Melissa Phillipson (who has been a fabulous fundraiser) has come up with the idea of rasing money by filling up a Smarties tube with 20p pieces! Eat the Smarties and raise money - great fun for all ages!
Once you have filled your tube, you can pay the money raised into our Justgiving account or send a cheque to PO BOX 382, Burgess Hill, RH15 5DA. Don't forget to include your name when paying the money in!
Challenge Scotland Summer Events: 2nd June 2013 details are here! Would you like to take part?
Sunday 2nd June 2013
This year the Challenge Scotland Summer Events will start and finish in the Edinburgh College Sports Grounds on Marine Drive, Silverknowes. The new event routes will take participants through many picturesque parts of Cramond Village, the River Almond walkway, and Laureston Castle.
The online registration process has been improved making it easier to use. IIH UK are an affiliated charity so you will save on fees when registering.
This year they are launching a new event The Great Scottish Buggy Run, which is the chance for Mums & Dads to jog or run with their little ones around the 5k Buggy course.
IIH UK are now affliated with Challenge Scotland! We had some wonderful volunteers who are took part in the 6 Mile Walk and 5k Fun Run for the Christmas challenges.
If you would like to take part in one of the sponsored events and raise funds for IIH UK you can register at the lower rate.
Our champion walkers raised nearly £800 for IIH UK! You can still donate to their justgiving pages here: http://www.justgiving.com/Rhiannon-Campbell1 and http://www.justgiving.com/hannahtrickett2
For more details and how to sign up, please see the Challenge website which is currently being developed: www.challengescotland.com
A big thank you to 13 year old Sophie Sellar, who baked cakes at her school for IIH UK and raised £90.80! Mum Tracy, who was diagnosed with IIH only 10 weeks ago, said she was very proud of her. Well done Sophie, we are proud of you too!
Sponsored Head Shave!
On the 7th December, fundraiser Martine Pell shaved off all her hair to raise money for IIH UK. Please visit her Justgiving page and share with your friends. Thank you. http://www.justgiving.com/Martine-Tina-IH-Pell
Brighton Marathon 2013
We have a fabulous opportunity for any runners out there! IIH UK have 2 charity places available for next years Brighton marathon. Please email
for further details.
At just 11 years old IIH sufferer Melissa Philipson has to be one of IIH UK's most courageous fundraisers.
As if swimming with Sharks wasn't dangerous enough Melissa undertook a an Indoor Sky Dive! She raised £531.50 for IIH UK. Thank you Melissa!
You can still sponsor Melissa by visiting her page on Just Giving. Thank you Melissa.
Alsager Diamonds Youth Football Team
The Alsager Diamonds Football Team have had their new kit made with the IIH UK Logo on to raise awareness for IIH UK.
Here we have a fabulous photo of some of the team wearing their new shirts!
Assistant Manager Ben Chamberlain on the left of the photo, whose sister suffers with IIH, will be encouraging the club to fundraise for IIH UK over the coming season.
We we will keep you updated with their events.
Alison Perry held a fundraiser at work in June for IIH UK. Alison says 'I work in Eli Lilly’s pharmaceutical company headquarters, they enjoy raising money for charity. One idea called “Casual Friday” allows staff to wear casual trousers and donate £1.00 to the “charity of the month”. I asked to nominate “IIH UK” for a month.
All through June the staff popped their £1.00 in the pot. On the last day of June, I set up a stand in our restaurant with various posters and leaflets; a laptop to play Lana Mae Garretts battle with IIH and left Hayleigh to talk about the condition and what it means for sufferers. I truly think she “raised awareness” of IIH in a place of vast medical knowledge in a professional way.
The Lilly staff raised £320 in June 2012 to help IIH UK. Hayleigh also added her penny jar which raised another £50 towards the charity that supports her condition.
We had a Super September with so many people fundraising and raising awareness! We woudl like to thank you all!
Dave and Neil Shepherd's cycled a massive 110 miles from Glasgow to Edinburgh in just 10½ hours!
Dave’s daughter Karen, an IIH sufferer, said, 'So proud of my Dad and Brother after they cycled 110 miles to raise money for IIH UK. They raised an amazing £900, which is being doubled by brother's employer Bibby Offshore - so a huge grand total of £1800 is on its way to IIH UK, without whom I would of struggled to get through these last two years xx'.
A HUGE thank you to Dave, Neil and Karen for such an amazing fundraiser!
Rob Phillips ran the Shire Half Marathon on the 7th October for IIH UK raising over £200! Rob ran the race for his friend Hayleigh Perry who is an IIH Sufferer. He broke his own personal record for the run. Many thanks Rob!
Jane Woodcock's head shave on 25th September.
Jane said 'With September being IIH Awareness month I decided to hold a sponsored head shave in preparation for having a VPL shunt inserted.
My hairdresser, who I went to school with, agreed to do the deed and also to help raise funds, was held on 25th September, 2012 at Palmers Hair Designs in Bourne Lincs. The event (before and after) was also covered by 2 local newspapers. My mum did a fantastic job with raising funds and displayed a poster in her front window. Also my Slimming World group helped to raise funds too by plugging the event over the last 3 weeks.
After a final totting up I managed to raise £502!'
A big thank you to you Jane!
Another big thank you to Kat Curtis who has raised an amazing £395 for her head shave on her to support her Wife Leeann Curtis who is due her 8th VP Shunt surgery soon.
Kayleigh Johnstone organised a fabulous evening event in Liverpool on 15 September. Kayleigh sweet talked 10 local artists and bands to give their time freely to raise money for IIH UK.
Kayleigh managed to promote both the event and IIH UK on her local radio station and, after an incredible set, the main act KOF agreed to donate money towards the funds from his own CD sales!
The event was packed and was full of fun and laughter; indeed, people have already asked Kayleigh when the next event will be!
The evening was a great success and whilst funds are still being counted, £370 has been raised so far.
Thank you Kayleigh!
Lizzie Stuart’s Birmingham 5K Fun Run.
Lizzie said ‘I'm Running 5K for IIH UK because I want to help people like my mum to get better’. Mum Zoe said ‘she was such a brave little girl to complete the run on the Sunday morning as I was taken into hospital on Saturday and so was unable to run with her. Her Uncle Alex jumped in and drove up from Oxford to run with Lizzie, whilst her Dad and little brother cheered her on’.
Lizzie has raised £163 so far and Zoe hopes there may be more to come! A big thank you to Lizzie and her family.
Sponsored Sky Dive!
The brave Natalie Markham went ahead with her sponsored Sky Dive for IIH UK!
Natalie says: 'In the time my family have known Lisa, our friendship has grown and we have become the best of friends, but throughout this time we have seen how much IIH effects her daily life and also the effects it has on her husband, two young children aged 6 and 7 and the rest of her close family.'
The event was held on the 26th August 2012, Sibson Airfield. With the help of her friends and family and peoples huge generosity, Natalie raised over £750!! Thank you Natalie!
You can still donate to Natalie via her JustGiving page http://www.justgiving.com/Natalie-Markham.
Mark and Maria Tomes, helped by their daughter, ran an IIH UK awareness and fundraising stall at the Church Hill Community Day in Redditch on 15th September and raised £100!
Richard Tingley and Wesley Coleman friends of Maria & Mark Tomes are undergoing a Charity Wax, whereby their legs & chests will be waxed to raise funds for IIH UK. The date is 31 October and the venue is St Andrews Church, Church Hill Centre, Redditch, Worcs at 12.00.
Maria and Mark have already raised £300 for IIH UK and friends and colleagues have donated a further £200.
If you would like to donate please see their Justgiving page here: http://www.justgiving.com/Mark-and-Maria-Tomes
Elvis Brown ran the Warrington 10k and raised over £500 for IIH UK. Thank You Elvis!
Lance Clifton ran in the Kent Coastal Marathon for his daughter Lauren who suffers with IIH. Lance raised £630! Thank you Lance!
Sunday 22nd July was also the day for the Great North 10K Run. Taking part for IIH UK are Helen Williamson, Nikki Dodds as well as two of Sainsbury's staff from the Sainsbury's Northumberland Park Store in Shiremoor, Newcastle Upon Tyne.
Many thanks to the Sainsbury's staff pictured here with the IIH UK runners, who presented IIH UK with a Cheque for £220.50.
You can donate to Helen and Nikki's JustGiving pages here:
Stephen Pooley ran the London 10K for his sister Karen who suffers with IIH. He has raised an amazing £865!! Thank you Stephen!
You can still donate to Stephen's page here: http://www.justgiving.com/Stephen-Pooley
The 1st IIH UK 20 Week Weight Loss challenge was completed at the end of May 2012. The challengers lost an amazing 529lb's between them and raised an astounding £2380!
The winner of the first challenge was Louise Peet who lost 53lb and won the Body Shop Hamper donated by Hayley Simpkins. Congratulations to all who took part and a huge thank you for the funds raised.
The 2nd 20 Week Weight Loss Challenge started on the 2nd July, registration is still open - please see the website for more details: www.iihukwlchallenge.moonfruit.com
Hannah Exton and Katie Todd raised £150 with their Tombola stall for IIH UK.
Thank you very much Hannah and Katie for your hard work.
On the 14th April 2012, Henley Rugby Football club held a remembrance game for Sarah Hibberd. Sarah suffered with IIH and over 11 months had 22 operations. She sadly passed away in September 2011.
Before she became ill Sarah played for the Henley Hawks Ladies Rugby Team.
It was a wonderful day full of love for Sarah and with a huge amount of fundraising. The Club raised an amazing £4100 for IIH UK!
The money from this fundraiser has enabled us to begin setting up the Sarah Hibberd Conferences. We would like to extend our heartfelt thanks to all involved on the day and to Sarah’s mother, Elaine Phillpot.
Henley Standard news article about the game and Sarah Hibberd.
Hannah’s sponsored bike ride
Hannah wanted to raise some money to help her sister Emily who has IIH get better. She decided to bicycle around Clumber Park Lake - quite ambitious for a little girl who only learnt to ride without stabilisers last August!
Hannah completed her bike ride on Saturday 7th January, accompanied by Emily, Richard and her Grandparents. She cycled approximately 4.5 miles in about an hour.
You can see Hannah here at the AGM with the cheque for £3100!
The money Hannah raised will help IIH UK achieve some of its aims. We would like to thank Hannah and her family for such an amazing gift to IIH UK.
Many other wonderful fundraising activities have taken place which you can read about in our newsletter on the resources page. You can also see many of our current fundraisers on the IIH UK JustGiving Page.
If you would like to fundraise for us please see the How you can help page for more information.