I went to the doctors with an eye infection in May last year, and ended up at the eye clinic where they said I had swollen optic nerves and mentioned a brain tumour...that was on the Friday. The following day I slept for five hours and I woke up and I couldn't see out of my right eye. I went straight back down hospital, where I had a funny turn which scared the doctor, me, and my partner at the time. I had an MRI and BIH was diagnosed. I spent seven days in hospital.
My LP pressure has never been higher that 28, but I don't need it be high to effect me. Was given Diamox told to lose weight and have my coil taken out. Here I am nearly a year and a half later and i feel like I have been robbed of my life to some sort of degree.
I have lost my partner which is the biggest loss. Trying to discover this new Leanne has its high and lows but, "I AM STILL HERE"" – hooray for me!
So learning to lilve with this condition on my own is going to be difficult. I lost 4 stone like the doctors said, I didn't have the coil taken out because I didn't need to, and it still hasn't gone.
How IIH has changed my life – learning to love myself and understand this new me, but hey life is here to try us, so I can't go around feeling sorry for myself all the time. And just becasue I can't go at 100 miles an hour like I used to be I am becoming a more chilled and relaxed person which is what I like about the new me, and I just have to go a little bit slower now.
'Leanne'