Links to other organisations See our Resources page

Links to organisations IIH UK work with, is linked to or recommend.

 

 

 

Family Fund is the UK's largest charity providing grants for families raising disabled or seriously ill children and young people. We aim to give all families raising disabled or seriously ill children and young people the same opportunities as others by providing grants for essential items such as washing machines, sensory toys, family breaks, bedding, clothing and computers. Find out more on 01904 550055 or join the conversation on Facebook, Twitter or on our website.

Rare Disease UK Campaignon behalf of all those affected by a rare condition.
The Brain & Spine Foundation is a charity helping people affected by neurological conditions. The neuroscience nurses on the Brain & Spine Helpline offer support and information and can answer your questions on neurological symptoms, tests, investigations and conditions. Brain & Spine Helpline: 0808 808 100
Headway- The charity that works to improve life after brain injury. Provides information, support and services to people affected by brain injury, their family and carers.
The Brain Charity offers emotional support, practical help and social activities to anyone with a neurological condition and to their family, friends and carers. The Brain Charity forms part of the Neurological Alliance of which IIH UK are members.
Cerebra is a unique charity set up to improve the lives of children with brain related conditions through research, education and directly supporting the children and their carers.
The Child Brain Injury Trust aims to improve the quality of life for children and youth with a brian injury by providing a helpline, events, conferences, research, advocacy, grants and funding.
Contact a Family is the only UK-wide charity providing advice, information and support to parents of all disabled children. Free Helpline: 0808 808 355
IPSEA is a national charity providing free legally based advice to families who have children with special educational needs. All advice is given by trained volunteers.
Carers UK is a Charity set up to help the millions of people who care for family or friends. Helpline 0808 808 7777 
The RNIB offers support and advice to blind a partially sighted people in the UK, helping people who have lost their sight to find their lives again. Helpline: 0303 123 9999
The Royal Society for Blind Children exists to help blind and partially sighted young people to live life without limits. With a history spanning more than 170 years the RLSB has become an expert in helping blind people achieve their goals in life.
The British Tinnitus Association offer tinnitus advice and information. Helpline: 0800 018 0527
Patient Info offers trusted medical information and support.
PALS online provide a range of information to the public, healthcare and other professionals about the Patient Advice and Liaison services.
   
   
Raremark community managers connect families worldwide with up-to-date information, community insight and trials.
Non Invasive ICP is a Lithuanian-based scientific articles and forum portal about intracranial pressure and disease associated with it. They are trying to encourage and stimulate discussions in Lithuania and internationally about the importance of excess ICP, its diseases and new methods of ICP monitoring.
Codman is a global neuroscience and neurovascular company that offers a wide range of devices and solutions and treatment of neurological disorders. Codman aims to improve the quality of life in patients worldwide by developing innovative solutions across a broad spectrum of neurological conditions.
Household Quotes offer advice on how to get home adaptions if you're blind or partially sighted.
The NASA Human Health and Performance Centre is a virtual centre that brings organizations together to advance human health and performance applications related to space and life on hearth. Member organizations address global issues and spaceflight challenges, share best practices and post collaborative projects that accelerate innovation.
  Gov.UK- The new place to find government services and information replacing Direct.gov and Business Link - Simpler, clearer, faster
Wikipedia has a good explanation of IIH and it's symptoms and treatment.

NHS 111 service is the non emergency number. It's fast easy and free. You should use the 111 service if you urgently need medical help or advice but it is not a life threatening situation.

Intracranial hypertension as described on the NHS Choices website.

 

These links are provided as a source of information on websites operated by other parties. We do not control such websites and we take no responsibility for their content. These links are provided for information and our inclusion of links to such websites does not imply any endorsement of views, statements or information contained in such websites.

 

For IIH UK resources - please click here