IIH UK has an extremely supportive online group with over 3000 members. Here people share their experiences, offer tips and there is an extensive file section with useful information such as holiday insurance or what to pack for a hospital visit. This group is a live life for many who have never met anyone with the condition!


IIH Support UK Group




IIH UK also have several regional groups throughout the UK where people will talk about local services and meet up for a chat and a bite to eat while offering each other and there families support.

Why not join the Facebook support community! Just click on the links below to join a group. 





East Anglia West Anglia East Midlands West Midlands North West South East North East Yorkshire South West Yorkshire North Wales South Wales South West Norther Ireland Scotland North East



Why not arrange a meet up in your regional group and we will advertise it here


Upcoming Meet Ups:

Northwest - 22th Oct 2016 @ 1pm
Revolutions, King Street. Wigan WN1 1DY


The Northwest and North East have had several good meets ups this year and are always looking for new people to join them.


Small get togethers are organised by members and details can be found on the IIH Support Forum, our IIH UK National Charity Facebook page and in our quarterly members Heads Up! Newsletter.