Help us Fundraise 

   Get Active 4 April 

We understand that not all those with IIH can take part in a Sky Dive or run a marathon so Active 4 April allows IIHers to create their own bespoke daily activity target, within their own physical capabilities and fundraise for IIH UK at the same time! Once you have decided on your target each day you can ask your friends and family to sponsor you, but the choice is yours. Visit the Active 4 April page to find out more. 

  A guide to fundraising success.

Whether you’re planning to fundraise on your own or with friends, at work or school, we can help with ideas to make your event a great success!

Planning a Charity Ball or a Supermarket Bag Pack, we can help with tips and advice and can promote your event on our charity pages. Don't forget to tell us!

We have a Fundraising leaflet  that has information and ideas to help you plan your event - please email This email address is being protected from spambots. You need JavaScript enabled to view it. if you would like one! Charity Choice gives examples of others ways you can help, from legacy donations to donating unwanted gifts.

Did you know that you can make one off donations or set up a regular direct debit to IIH UK here. To find out more about any of the items mentioned above or for any further advice or queries please email This email address is being protected from spambots. You need JavaScript enabled to view it.

Your fundraising helps pay for printing and postage costs and for IIH UK posters and leaflets which are displayed in some UK hospitals. It pays for the running of the IIH UK website and International forum. It also pays Trustee costs who visit medical advisors and facilitates meetings for the teams working with IIH UK but most importantly it allows us to fund research.

Your fundraising enables us all to be Working Together To Relieve The Pressure.

If you would like to pay any fundraising money raised into IIH UK’s Bank, our details are: Account NatWest, Account No: 33607184. Bank sort code: 60-40-09.

Alternatively, you can send a cheque or postal order to: IIH UK, 19 Woburn, Washington, Tyne and Wear. NE38 7JX


Fabulous Fundraisers!

Fabulous Funraisers

As a small charity, we rely solely on the goodwill of our fabulous fundraisers. We enjoy seeing photos of the events you organise and publish pictures to our website.


IIH UK is members of the following organisations.

  Genetic Alliance Logo    Neurological Alliance Logo     JLA Logo    Alliance    ;NCVO Logo    RDD Logo