The IIH Medical Condition CardIIH Medical Condition Card has been designed for IIH sufferers to carry with them. The card can be personalised with important details such as prescribed medication, hospital phone numbers and emergency contact details.

Medical Condition Cards are available from our online Shop HERE.

Did you know that individual membership of IIH UK includes 2 IIH Medical Condition Cards? So for the cost of just £5, you can receive these plus an IIH UK pin! You can pay online too and save the cost of postage. Please see the  Membership page here


IIH UK Headache DiaryIIH UK Headache Diary. Download and print this IIH UK headache diary to keep track of your symptoms and triggers etc. Many Consultants ask patients to keep a diary of their symptoms, you could complete this and take it with you to your next appointment.

IIH UK Headache Diary.pdf

IIH and Pregnancy

Drugs that are safe to take whilst pregnant

Access to work for employers

Access to work Practical Help

Can I get an Access to Work Grant?


Further Resources

The Medtronic leaflet below details the magnetic field and strength in products such as mobile phones and the influence they can have if they are held too close to a magnetically adjustable shunt valve.

Medtronic Strata Magnetic influence.pdf


This CSCerebrospinal Fluid (CSF) posterF poster describes CSF function, composition and more.

CSF Information







Brain and Spine FoundationThe Brain and Spine Foundation is a charity helping people affected by neurological conditions. The neuroscience nurses on the Brain and Spine Helpline offer support and information and can answer your questions on neurological symptoms, tests, investigations and conditions.

The Helpline is open 9am - 2pm Monday to Thursday and 9am - 1pm on Fridays.Call free on 0808 808 1000 or email This email address is being protected from spambots. You need JavaScript enabled to view it. The Brain and Spine Foundation also has a range of patient information booklets and fact sheets on neurological topics.

For more information visit

IIH UK is members of the following organisations.

  Genetic Alliance Logo    Neurological Alliance Logo     JLA Logo    Alliance    ;NCVO Logo    RDD Logo